Comments for Bright Side of the Road Foundation

Comment on Founding Bright Sider Passes Away by Julia Leonard

Julia Leonard — Tue, 16 Nov 2010 00:04:48 +0000

Hey everyone!:) I just want you to know that i love everyone who has made Barry happy!!!:) sometimes I think to myself that we can make dreams come true and we CAN if we believe!!!!!! I love you all and thank you so much!!

Xoxo, Julia

Comment on Who is Dr. Erik Pioro? by Dr. Erik Pioro

Dr. Erik Pioro — Sun, 07 Nov 2010 21:21:39 +0000

Hi Larry - Sorry for the delay in replying. I didn’t realize someone may post a question on the BSOR website and I just happened to see it tonight so thought I would respond.

Your question is whether dextromethorphan + quinidine (now approved by FDA as Nuedexta for the treatment of pseudobulbar affect, PBA) would be useful in treating inclusion body myositis (IBM). Based on what I know of the mechanism of action of Nuedexta and the pathogenesis of IBM, I would have to say no (unfortunately). Although IBM is considered to have some degree of inflammation, it behaves more like a progressive degenerative condition of the muscle, not unlike ALS is a progressive degenerative condition of motor neurons.
Therefore, it is not impossible that a future treatment for ALS would work in IBM - but as far as I can see now - Nuedexta would not be expected to have a benefit in IBM, sorry.

Has your neurologist tried some of the anti-inflammatory treatments like IVIG?

Best wishes-
EPP

Comment on Who is Dr. Erik Pioro? by Larry Leisher

Larry Leisher — Thu, 14 Oct 2010 01:06:08 +0000

Good evening Dr. Pioro:
My name is Larry Leisher and I live in Fleming Island, Fl. In 2005 I was DX with IBM. At one point it was thought that I may have ALS but after a muscle biopsy it was determined to be IBM. As you know there is no cure or treatment for IBM. Because of the closeness of the 2 diseases I follow up on research on ALS as well as IBM. I heard an editorial on the local radio about your study of DEX-QUIN and ALS. I was wandering if there is any possible connection that this may be a treatment for IBM. I guess I am just grasping for something to hang onto and possibly slow down the progression of IBM.
Thank you for your time and resonse.
Sincerely
Larry Leisher
1433 Water Pipit Lane
Fleming Island, Fl. 32003
(904-505-6497)

Comment on Columbus Guest Bartenders Set New Record! by Jim Van Meter

Jim Van Meter — Wed, 22 Sep 2010 20:21:25 +0000

Hi,
I am Julie Cline’s Dad. I am soooooo proud of her efforts and determination to make this event the sucess that is was. I know it has been a while since the event, but since moving to Key West things have changed so far as my attention to time, dates, months and reading emails. I guess it’s one of those “because I can things”.
Anyway, I wanted to let you know (just in case you didn’t) that Julie loves you deeply and so do I. Continue on the Bright Side Of the Road because it beats the shadows.
Try to be good and behave. Even though no one is gonna kick your ass if you are’nt once in a while.

God is blessing you every day,
Jim

Comment on Founding Bright Sider Passes Away by Tom & Joy Gallagher

Tom & Joy Gallagher — Thu, 22 Jul 2010 19:52:10 +0000

There are no words to adequately express our sympathy at the loss of Bob to the WInovich family. God bless all.

Comment on Guest Bartending Tour Returns to Cleveland on May 8th! by Ellen Bendokaitis

Ellen Bendokaitis — Sat, 08 May 2010 02:53:18 +0000

Let’s find a cure for Gary & Barry and all those with Als

Comment on Guest Bartenders Raise $28,957 in Los Angeles! by grant simpson

grant simpson — Mon, 29 Mar 2010 04:17:19 +0000

hey guys i am a son of a als patient my father has had it since 1997 and i was wondering how you do the guest bartending. i am a bartender and i live in michigan and would love to get involved. thanks Grant A. Simpson

Comment on VA sees connection between ALS and military service by US Army Mycoplasma Fermentans Incognitus Patent

US Army Mycoplasma Fermentans Incognitus Patent — Sun, 28 Mar 2010 21:38:10 +0000

[...] a connection to military service. If a veteran gets ALS, s/he may be entitled to certain benefits: VA sees connection between ALS and military service | Bright Side of the Road Foundation Posted by Bright Side on April 16th, 2009 The Department of Veterans Affairs has determined that [...]

Comment on Guest Bartenders Raise $28,957 in Los Angeles! by Kenny Koprowski

Kenny Koprowski — Thu, 04 Mar 2010 14:23:34 +0000

I think I could have brought in a few thousand more bucks if I bartended with my shirt off!

Comment on Bright Side Kids Present Ice Blast 2009! by ZhuZhu Pets

ZhuZhu Pets — Tue, 08 Dec 2009 01:58:40 +0000

Is there going to be another ice blast soon now that the weather is starting to dip down? I missed the first one and I’m sad about it…